A Cripistemology of Pain: Experiences and Recognition of Endometriosis
The discussion proceeds from my PhD project "Painful Subjects: Endometriosis, Experience, Recognition", which is based on in-depth interviews with people diagnosed with the chronic illness endometriosis. Endometriosis is a common disease affecting one in ten people menstruating. The most common symptoms are chronic pain and infertility. Even though this condition has severe effects on perceived quality of life, it is difficult to receive help and support, and the road to diagnosis is often long. There are many difficulties that come with living with a painful condition that is not directly visible to others. My study combines feminist phenomenology and recognition philosophy with crip perspectives on normative embodiment and compulsory able-bodiedness. The concept of a "cripistemology of pain" can be understood as the node where these theoretical strands intersect – and become acutely political.
Ina Hallström is a PhD student in Gender Studies at Stockholm University and lives with chronic pain.